On 15th My 2012 we launched a campaign requesting Government Funding for research into the cause of CDH. We require 100,000 signatures by this time next year to get this request before the House Of Commons; this is a big call and a lot of signatures. Can we do this? We are certainly going to try!! This will also raise tons of awareness. Please share this epetition on facebook, twitter and as many other social networking sites as you can. You can also email it to people to sign. To find out more about our epetition and to sign it please click on the link - Let's all try make a difference!

http://epetitions.direct.gov.uk/petitions/33898

Shelley Simmonds has organised a Charity Dinner Dance to raise funds for some fantastic charities; CDH UK is one of them! click the following link for further information and how to obtain tickets

http://www.facebook.com/#!/events/112513668875029/

Here at CDH UK we know how important it is to find the cause (or causes), prevention and improved treatment and management of Congenital Diaphragmatic Hernia and is one of the main aims and objectives of our charity.

Research and study in most cases can cost many hundreds of thousands of pounds and it is therefore extremely important for us to build on our Research Fund so that we are able to contribute to the studies/research programmes that we feel are worthwhile.

Our current research fund stands at just over £20,000 and our target is to reach at least £100,000. This is currently made up from funds raised from our annual charity ball and from donations and fundraisers where it has been specifically requested that funds are used for this purpose.

If you are a researcher and would like to talk to us regarding funding for study or research relating to CDH please email .(JavaScript must be enabled to view this email address)

Lee Watson is running in the Paris Marathon in April to raise funds for our cause! to find out more and to sponsor Lee, click on this link:

http://www.facebook.com/events/218099654945368/

Maria Carrington is taking part in the Adidas Silverstone Half Marathon in honour of her son Frank who was born with CDH and to raise funds for our cause. You can find out more and sponsor Maria by clicking on this link:

http://www.facebook.com/events/324646120909588/

Date 18th August 2012

Time 12 noon till late

Venue. Kings Lynn ,Norfolk

The full address details will be posted nearer the time once we have a better idea of attendance numbers.

CDH UK welcomes all families both survivng and non surviving, to have a great day out to share experiences, form friendships and support each other.

Please let us know you are coming by registering .(JavaScript must be enabled to view this email address)

The 2011 CDH UK newsletter is now available as a PDF download. Get your copy now

Our Second CDH UK annual ball was held at Brighouse Sports and Social Club on Saturday 10th of Sept. Everyone had an absolutely fabulous time with a great band,great food and two lovely special guest Charley Webb and Matthew Wolfenden from the Emmerdale Farm TV show. We raised a fantastic amount of money and spent a great evening raising of awareness of CDH to the wider community. Below are the final figures for this great event.  On the night Total  of £4,359  Profit on the sale of the tickets was £1794, Auction £2000, raffle bands and badges £565 We would like to thank everybody who helped make this evening possible in their own special way.

Join us in our National campaign to raise awareness of CDH by 'popping' up posters in public places local to you.

There are lots of Social network sites that can act as a great platform to raise awareness of CDH, but there are lots of people out there who are not users of these sites, or visit them infrequently. There are also people who choose not to use the internet, or don't have access to it. Posters are a great way to get a message out there and can be displayed in places where large numbers of people pass through or visit to allow as much exposure as possible to be achieved. They are used by many charities and have been done for many years to gain support & raise awareness of their cause, so naturally designing our own poster was always on our 'to do' list and with the amazing amount of fundraising that has been done by you this year it has made this possible - so well done!!

Some examples of the places you can put up the posters are:

Community Centres

Public libraries

Workplaces

Information centres

Activity & Leisure centres

Childrens play centres

Mother & baby groups

Childrens Nurseries

Hotels

Petrol stations

Cafes

And there are many more.

Of course we always advise that you request permission prior to putting up the posters, as some venues require Head Office permission to allow posting of any kind and some may not allow posting at all. The Proprietor, Manager or someone in authority should be able to help you.

The poster design is bright & therefore eyecatching, it is A3 in size and has a matt sheen finish. It is representitive of the approximate 1:2500 babies diagnosed with CDH and each baby is represented with our logo (of which there are 2500 we are told!) the 1 baby diagnosed with CDH is depicted in white, to stand out from the rest and this is therefore the '1' in 2500. The writing is set inside a circle pointing to the white logo, which is representitive of a hole in the diaphragm and the wording focuses on the message that CDH is fatal in some cases, can lead to long term suffering for some survivors, that it could affect them or their family and that although described as a rare birth defect, it actually is more common than people perceive it to be. The call to action from the poster is that the viewer visits the CDH UK website to find out about CDH and informs them that this will help babies & families. How will the viewer help? by hopefully telling others about CDH, donating & fundraising. The more people that know about CDH the more chance we have of campaigning for further research into the cause, prevention & better treatments of CDH.

To volunteer and to obtain your free posters, please contact .(JavaScript must be enabled to view this email address) referencing your email 'Poster Campaign' and provide us with your full address details. The posters are sent free postage in a tube containing 5 no. posters, but if you require more just let us know. Remember also that you can share this poster around facebook to raise even more awareness and you can ask your family & friends if they would like to 'Pop Up A Poster' too!